So we have started the GFCF diet (sort of). The Superhero no longer has porridge and now eats gluten free/wheat free/dairy free bread. So far his excema has nearly gone, eye contact is up and we have loads more sentenances and less talking about himself in the third person. The down side is he is eating practically nothing, is losing weight and is sleeping alot which is very unusual for him. How long do I let my Superhero survive on GF/CF toast and chips? Do the pros outweigh the cons?
I despise this about his condition, this horrible questioning feeling about whether I am doing the right thing by him or not. It's so hard to know as Superhero hasn't yet got the language skills to tell me if something is wrong. He can't tell me if he is hungry or sore or sick. I am clueless.
Once a parent gets an ASD diagnosis they have to turn into Sherlock Holmes and deduce everything from the smallest clues given. It's hard, very hard and I feel totally alone while doing it. Not even the Rock Star Daddy or Magnificent Granny get it fully. If I miss something that triggers a meltdown then its my fault that the Superhero has a bad day, that he hurts himself, that he gets upset. Its an awful feeling seeing your child in pain and knowing that its your fault. On that self pitying note I am signing off for this post. Tomorrow is a new day and I'll get up, don my deerstalker and get ready to do battle all over again.
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